Lymphedema Doctor in Denver

Hello I am new to Lymphedema and I am living in Denver. Can anyone help me find a doctor in the Denver area. I have looked on the list of providers and have not found one in Denver.
I am a 33 year old female. I am very active. I run, swim, Mt Bike, hike anything outdoors. I compete in triathlons, I am active... so when I woke up on December 6th 2009 with a very swollen ankle I thought it was an insect bite. BUT... it never went away:(
Over a year later I am still living with a swollen ankle, calf, thigh and lymph nodes in my left groin.
I have been tested for EVERYTHING and noone can give me a definitive answer with what is wrong. Some doctors "think" I have lymphedema but then others have said no it isn't...but they don't know what I have!
The level of my swelling in my leg varies. It is NEVER consistent. It fluctuates which I guess is good because it doesn't stay huge forever, but I dont understand what makes it worse.
These are all the things that doctors over the past year have considered me having...: Lyme disease, DVT, Gout, rickettsia, cat scratch, saphenous vein with reflux. I had a lyphoscintigraph which showed negative results. I was sent to Rheumatology and was advised to go to Phsyical Therapy, for Lymph massage. (which didnt do anything for me). I don't have any of these.
I am so sorry for anyone who has to live with the not knowing part of Lymphedema. That is the hardest part for me. Not knowing if I have Lymphedema. At least then I could start being content and realize I have to live with it.
I now have numbness in my last two toes on my left foot, it comes and goes. It is MUCH worse when I am riding my bike and painful and really hot feeling.
I have painful swelling in my leg and sometimes it hurts more when it isn't swollen than when it is. All very inconsistent.
If anyone has had any luck finding a good doctor in Denver I would really appreciate it.
Thanks so much! All the best.
Rachel
I am a 33 year old female. I am very active. I run, swim, Mt Bike, hike anything outdoors. I compete in triathlons, I am active... so when I woke up on December 6th 2009 with a very swollen ankle I thought it was an insect bite. BUT... it never went away:(
Over a year later I am still living with a swollen ankle, calf, thigh and lymph nodes in my left groin.
I have been tested for EVERYTHING and noone can give me a definitive answer with what is wrong. Some doctors "think" I have lymphedema but then others have said no it isn't...but they don't know what I have!
The level of my swelling in my leg varies. It is NEVER consistent. It fluctuates which I guess is good because it doesn't stay huge forever, but I dont understand what makes it worse.
These are all the things that doctors over the past year have considered me having...: Lyme disease, DVT, Gout, rickettsia, cat scratch, saphenous vein with reflux. I had a lyphoscintigraph which showed negative results. I was sent to Rheumatology and was advised to go to Phsyical Therapy, for Lymph massage. (which didnt do anything for me). I don't have any of these.
I am so sorry for anyone who has to live with the not knowing part of Lymphedema. That is the hardest part for me. Not knowing if I have Lymphedema. At least then I could start being content and realize I have to live with it.
I now have numbness in my last two toes on my left foot, it comes and goes. It is MUCH worse when I am riding my bike and painful and really hot feeling.
I have painful swelling in my leg and sometimes it hurts more when it isn't swollen than when it is. All very inconsistent.
If anyone has had any luck finding a good doctor in Denver I would really appreciate it.
Thanks so much! All the best.
Rachel