Swelling in stomach somebody can help?

I have lymphedema in both legs and my stomach. 10 years ago I had a operation to remove excess fluid, fat. flesh. I had lymp. But the doc.s didn't know it. It was the most painful thing I have had to go through. The doc. said I better not swell up again. Because I had no more skin she could sew me up again. Now I have the problem comming back. I don't know what to do. It affects so much of my daily life. My sleep. My back. It even makes it hard to walk. It is not real bad yet. Last time my stomach hung to my knees. The doc. says gravity causes the fluid to go to the lowest point. Does anyone else have this problem? Does anyone have any ideas what I might do to help myself????????