I just came from the local University Medical Center (charity) and I almost ended up in a screaming match with her over using a blood pressure cuff on me. How do you get them to understand?!! She said it was more important to see if I was going to have a stoke than any damage done to my arm. My blood pressure has always been lower than normal but I guess because of my size no one ever wants to believe me. Of course because I was so upset at them insisting on taking it, my blood pressure was high.
I am just at my wits end. The pain is driving me crazy. It took me 2 months to get this appointment and all they did was take my info and refill my thyroid prescriptions. But gave me amitriptyline for pain.

I am just so very frustrated. The pain has driven me to my wits end. I'm so tired of telling people what I have and them insisting it is something else. I have been trying for a couple of years to find a doctor to treat me, I had one doctor tell me there was no need to come back and another doctor (actually a friend) asked me what the hell I wanted him to do about it.
About two years ago I did see a foot doctor that diagnosed the lymphedema but I have moved so he is too far away now. He did prescribe MLD and I responded well in my legs, only problem was, as usual, it just moved into my abdomen. I do take very good care of my skin and do what massage I can myself.
I'm sorry if I'm rambling, I'm just at the end of my rope. I guess I just had my expectations for today a bit too high. Thanks for letting me blow off some steam.
I also want to tell you how grateful I am for this website. Thanks for giving me a safe place to vent I feel better already. If I was a drinker I think I would go out and tie one on. I gave today's doctor the web address, since she had never heard of Milroys (geez I had to spell it for her) and I'm not even sure she really knew what lymphedemia was.
love you guys
Diane